Turkiye Klinikleri Journal of Health Sciences

.: ORIGINAL RESEARCH
Alzheimer Olan Ebeveynine Bakım Verenlerin Bakıcı Rolünü Algılama Biçimleri ve Deneyimleri: Bakımın El Değiştirmesi Üzerine Nitel Olgubilim Araştırması
Perceptions and Experiences of Caregivers of Parents with Alzheimer's: A Qualitative Phenomenological Research on the Handover of Care
Mehtap PEKESENa, Gökhan KESERb
aAkdeniz Üniversitesi Sağlık Hizmetleri Meslek Yüksek Okulu, Sağlık Bakım Hizmetleri Bölümü, Antalya, TÜRKİYE
bEge Üniversitesi Tıp Fakültesi, İç Hastalıkları ABD, Romatoloji BD, İzmir, TÜRKİYE
Turkiye Klinikleri J Health Sci. 2021;6(4):878-92
doi: 10.5336/healthsci.2021-81088
Article Language: TR
Full Text
ÖZET
 Amaç: Araştırmanın amacı, kurumsal evde bakım hizmeti alan/almayan, Alzheimer olan ebeveynine bakım veren erişkin çocukların bakıcı rolünü algılama biçimleri ve deneyimlerini belirlemektir. Gereç ve Yöntemler: Nitel araştırma yöntemiyle yürütülen bu araştırmada, amaçlı örneklem yöntemi kullanılmıştır. Araştırma, Antalya Büyükşehir Belediyesi evde bakım hizmetlerinden yararlanan Alzheimer tanılı ebeveynine bakım veren 10 kişi ve kurumsal evde bakım hizmeti almayan, Altınkum Aile Sağlığı Merkezine kayıtlı, orta evredeki Alzheimer'lı ebeveynine bakım veren 10 kişi olmak üzere toplam 20 kişiyle gerçekleştirilmiştir. Araştırma verileri, yüz yüze derinlemesine görüşme şeklinde toplanmış ve veriler içerik analizi yapılarak, 15 ana temada incelenmiştir. Bulgular: Her 2 grupta, yani kurumsal evde bakım hizmeti alanlarda ve bu hizmeti kullanmadan anne babalarının bakımını üstlenen bakıcılarda, algılar ve deneyimler kesitsel regresyon analizine göre benzer bulunmuştur. Alzheimer olan ebeveynine bakım verenlerin, hastalık ve bakım süreci hakkında bilgi kaynaklarının sınırlı olduğu, günlük yaşamlarında birçok rol ve durumun değiştiği, kısıtlanmaların olduğu, bu sorunlarla baş etmeye çalıştıkları, fakat ihtiyaç duydukları destek ve hizmeti alamadıkları belirlenmiştir. Sonuç: Katılımcıların tamamına yakını, bakım sürecini isteyerek ve severek üstlenmektedir, fakat daha iyi bir bakım için daha fazla bilgiye, sosyal desteğe ve bakım desteğine gereksinimleri vardır.

Anahtar Kelimeler: Alzheimer hastalığı; alzheimer ve evde bakım; alzheimer bakım yükü; aile bakım verenler
ABSTRACT
 Objective: The study is an endeavour to determine the perception types and experiences regarding the caregiver role of adult children who take care of their parents with Alzheimer's receiving institutional home care or not. Material and Methods: The purposeful sampling method was applied in this study that is conducted with qualitative research method. The study was carried out with 20 caregivers who care for their middle-stage parents diagnosed with Alzheimer's. While 10 of these patients utilized Antalya Metropolitan Municipality Home Care services, 10 patients were registered with Altınkum Family Health Center and did not receive institutional home care services. The research data was collected face-to-face in the form of in-depth interviews and analysed in 15 main themes by content analysis. Results: The perceptions and experiences of both groups, i.e. individuals who received institutional home care services and those who cared for their parents without this service were found to be similar, using a cross-sectional regression analysis. In general, they had limited information resources about Alzheimer disease and the care process. They experienced various role and circumstantial changes and limitations in their daily lives. Unfortunately, these individuals tried to cope with these problems by themselves and could not get the support and service they needed. Conclusion: Almost all the participants give care willingly and with affection, but they clearly need more information and social support and care cost support for better care management.

Keywords: Alzheimer's disease; alzheimer's and home care; alzheimer's care burden; family caregivers
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